Events & Conferences
Bringing together families, researchers, and healthcare providers to share knowledge, build connections, and advance our understanding of HNRNP-related neurodevelopmental disorders.
2026 International HNRNP Gene Family & Research Summit
Sheffield, UK
Join us for four days of scientific presentations, family networking, and community building. This conference brings together families, researchers, and healthcare providers to share the latest research and support strategies for HNRNP-related neurodevelopmental disorders.
Venue Details
Leonardo Hotel Sheffield
119 Eyre St, Sheffield City Centre, S1 4QW
Sheffield, United Kingdom
Conference Highlights
- Presentations from leading HNRNP researchers
- Panel discussions with medical experts
- Family networking sessions
- Breakout groups by disorder type
- Kids and family activities
- Natural history study updates
9:00 AM – 1:00 PM, provided by SOS Care Services with support from Sheffield Children's Hospital Charity. Qualified carers trained in seizure support, tube feeding, autism/PDA, and mobility needs. Space is limited — a separate registration form is required.
Register for ChildcareEvent Schedule
Sunday, June 28
Scientific CollaborationMonday, June 29
Family & Research Day 1Free childcare provided by SOS Care Services with support from Sheffield Children's Hospital Charity.
Register for ChildcareTuesday, June 30
Family & Research Day 2Free childcare provided by SOS Care Services with support from Sheffield Children's Hospital Charity.
Register for ChildcarePlease note that all presentations will be conducted in English. If you require translation services for a specific language, please let us know in the field below. While we will do our best to source a translator for you, we cannot guarantee availability.
Attendance is free for all participants. Optional donations help cover conference costs.
Past Events
A look back at our community gatherings and the connections we've made.
HNRNP Family Foundation Gene Family Meeting
Ponte Vedra, Florida, USA
Our Gene Family Meeting was hosted by HNRNP Family Foundation and Yellow Brick Road Project. The meeting was an opportunity to connect families with services, HNRNP-RNDD researchers and clinicians, and the HNRNP-RNDD community.
Yellow Brick Road Project Chantilly, France Meeting
Chantilly, France
Our friends at the Yellow Brick Road Project hosted their second annual France/European HNRNPH2-RNDD meeting in Chantilly, France. Our Research Director, Dr. Maddie Gillentine, attended to meet with other HNRNP families.
HNRNP Family Foundation Virtual Science Symposium
Online, Worldwide
This symposium was the first opportunity to gather HNRNP-Related Neurodevelopmental Disorder experts to discuss the research they are conducting.
HNRNP Family Foundation Conference & Meeting
USA, USA
Our annual Family Conference and Meeting which gathered the HNRNP-Related Neurodevelopmental Disorder community including researchers, clinicians, advocates, and patients.
HNRNP Family Foundation Family & Scientific Symposium
USA, USA
Our annual Family Conference and Meeting which gathered the HNRNP-Related Neurodevelopmental Disorder community including researchers, clinicians, advocates, and patients.
Stay Connected
Join our community to receive updates about upcoming events, research news, and opportunities to connect with other families.
2026 International HNRNP Gene Family & Research Summit
Choose the registration type that best describes you: